Bulgaria marks international Rare Disease Day

At the initiative of the European Union of Patient Organizations for the Fight against Rare Diseases, on the last day of February, we focus on people living with a rare disease. Awareness campaigns are organized to raise public awareness of this issue.

Due to the lack of a national strategy and plan for rare diseases, Bulgarian patients are deprived of equal access to 19 of the 24 areas of healthcare for which the EU provides high-quality expert care, the National Alliance "Rare Diseases - Bulgaria" warns.

The organization calls on the authorities in our country, in addition to the traditional balloon release and demonstration of empathy for people with rare diseases, to take energetic and consistent actions to make the daily lives of these patients full and dignified.